Canary Advisors®

Canary Advisors® partners with biopharma, nonprofit, and regulatory stakeholders to better align clinical development programs with patient wants and needs. There's no one size fits all solution to advocacy. Our services are tailor-made to match the needs of the patient communities our partners serve.

Our Approach

We work with our biopharmaceutical, nonprofit, and regulatory partners to better understand disease impacts, unmet needs, and patient preferences.

Our Services

  • Early Stage Patient Advocacy

  • Regulatory and Legislative Patient Advocacy

  • Access, Launch, and Reimbursement Support

  • Clinical Trial Patient Support

  • Patient Experience Data Collection

  • White Glove Clinical Trial Concierge

Our team

  • Headshot of Jenn McNary, a white woman with curly hair smiling and wearing a green jacket

    Jenn McNary

    Co-Founder & CEO

    Educator and advocate with 20 years experience on the front lines of rare disease clinical development; drug approval and reimbursement; and advocacy.

  • Richie Kahn, a white man with a beard smiling with mountains in the background

    Richie Kahn

    Co-Founder & COO

    Clinical researcher and patient advocate with 14 years experience working to better incorporate the patient perspective into the clinical development process.

  • Karen Utley

    Patient Advocacy Associate

    RN and advocate with 15 years experience; highly skilled at relationship building and clinical trial education in rare and ultra rare communities

  • Liz Carter

    Patient Advocacy Associate

    Educator; multilingual rare disease patient advocate & engagement specialist; and newborn screening ambassador

  • Carolina Consuegra

    Medical Writer

    Multilingual medical writer; communications strategist; and advocate

  • Ashley Hamic

    Operations Manager

    PMP-certified project manager with 18 years of corporate experience, rare disease mom and advocate, and founder of Wish Wear Accessories.

  • "The Akouos team would like to recognize and thank Canary Advisors® for the support extended to one of our clinical participants and their family. From organizing travel logistics, to securing an interpreter, to creating a welcome guide to the city, Canary Advisors® was instrumental in assisting the family."

  • “ ...Canary Advisors® is exceptional at meeting corporate strategic imperatives by incorporating the patient/caregiver perspective. Whether it’s advocacy landscape mapping, regulatory planning, or reimbursement support, Canary was able to provide options and solutions to meet our organization’s needs.

    Tricia S., Biotech Client

  • “Jenn and Richie’s knowledge and experience in non-profits, industry, and rare disease are invaluable. They have guided our organization through several large-scale projects, including an externally led Patient Focused Drug Development meeting. We continue to use their expertise to help drive our organization forward.”

    Amy S., Executive Director, Lung Transplant Foundation

  • "If you are looking for a patient-focused drug and device development consultancy agency, I highly recommend Canary Advisors®. They are experts in connecting with patients and developing strategies that prioritize patient needs and preferences. They have an unrivaled ability to apply patient-centered design principles to ensure that drugs and devices are not only safe and effective but also meet the needs and preferences of the people who will be using them."

    Carolina S, Co-Founder, Marketing & Strategy Director, Science2People

  • "It’s always an honor to serve the rare community. Working alongside such an AMAZING team with Canary Advisors® makes it even better! Many thanks to Jennifer McNary and Richie Kahn for their hard work and dedication! It’s a privilege to call you colleagues, and even more importantly, friends!"

    Karen U., Non-Profit Leader

  • “Over the years, we’ve partnered with a good number of organizations representing patients and the patient voice, but none have been more responsive, impactful and innovative than Canary Advisors. Plus, both Jenn McNary and Richie Kahn are an absolute delight to work with.”

    -Andrew R., Co-Founder, Government Relations firm

  • "Our work with Canary advisors has been very productive and they have been very response and easy to work with. The team has great experience and quickly helped us formulate a plan to understand the landscape and engage with the patient community. The initial focus groups yielded very insightful input and clear next steps for building relationships and incorporating patient input into our development plans."

    -Bernard R., Biotech Client

  • "Working with Canary Advisors was a great experience as they brought valuable expertise in incorporating the patient perspective into drug development. Their collaborative approach and deep understanding of aligning clinical programs with unmet needs of the patient community made them excellent thought partners. They were easy to work with and ensured the project aligned with our company’s strategic priorities."

    -Seth R., Biotech Client

Featured Work

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